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This blog is really about our kids, Jacqui and Kyle:

Jacqui is a wonderfully energetic and opinionated five-year-old. She was born with a rare birth defect known as a lymphatic malformation (LM) and has been through a lot in her young life. She had a trach until she was a year old, had surgery in New York to remove her LM with world renowned surgeon, Dr. Milton Waner (at age three), and still has a G-tube. She is a bright sunny soul in spite of everything.

Kyle is a thoughtful, and slightly reserved 2-year-old with a magical giggle and a wise-looking smile. He is clever and charming and a bundle of pure joy.

Our goal as parents: To treasure every moment and to raise our children to be extraordinary individuals.

Welcome to an inside view of our world!



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Here Comes The Sun…

March 21, 2008

JS

Like the sun dispersing the clouds after a storm, Jacqui returned from her CVS episode this afternoon. And my heart rejoices!

Now we begin the task of weaning her back off tube feedings to eating on her own again. Thank you to all of you for your wonderful words of encouragement, warm thoughts, and priceless prayers. Our family is so blessed by each and every one of you!


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19 Comments »

  1. Gravatar Becky says:

    Praise to the Lord! :D
    The Almighty! :D
    The King of creation! :D

    Welcome back, Little Miss.

    Michelle, we are rejoicing with you.

    March 22nd, 2008 at 4:42 am

  2. Gravatar Jo says:

    what a beautiful doodle from a beautiful girl. So glad she’s okay again.

    Love to you both,

    J
    x

    March 22nd, 2008 at 11:41 am

  3. Gravatar Shannon @ Gabi's World says:

    Yayyyyy! Thank God! And Jaqui that is a beautiful picture!

    March 22nd, 2008 at 12:11 pm

  4. Gravatar Kristi says:

    It was a long road. I am so glad she’s on the mend. What a perfect picture to describe the joy returning.

    March 22nd, 2008 at 12:19 pm

  5. Gravatar DP says:

    I’m so happy that she is “back” in time for Easter. Maybe she will enjoy a long respite from her health issues.

    Peace and Happy Easter - D

    March 22nd, 2008 at 2:40 pm

  6. Gravatar Thomas Dzomba says:

    I am so glad Jacqui is felling better. And that is a beautiful picture.

    God Bless you all.

    Thomas

    March 22nd, 2008 at 2:51 pm

  7. Gravatar Marla says:

    Yes! I am so glad J is feeling better. Her drawing is precious. I love it. I hope you have a long long time before the next episode.

    March 22nd, 2008 at 2:54 pm

  8. Gravatar Kim says:

    Praise God. I am glad sweet Jacqui is back from that terrible place illness takes her.

    March 23rd, 2008 at 2:41 am

  9. Gravatar Donetta says:

    oh joy, we are so glad to hear it. I’ll tell my husband he also has been praying for all of you.

    March 23rd, 2008 at 1:55 pm

  10. Gravatar An Ordinary Mom says:

    This is such happy news!

    March 24th, 2008 at 4:55 am

  11. Gravatar Corey says:

    oh my….just the very thing I was hoping for. :) I’m so pleased.
    hugs to you my friend.

    oh and as for your recent “mean people” trouble….ignore them….they are just mean unhappy people. argh….

    March 24th, 2008 at 6:56 am

  12. Gravatar Deb - Mom of 3 Girls says:

    Oh I’m so glad - welcome back Jacqui, we’ve missed you!

    March 24th, 2008 at 3:32 pm

  13. Gravatar Angie says:

    Praise God! I’m just seeing this because my browser was only loading the post prior to this. I refreshed the page & was able to get the update.

    You made my day with this good news!

    March 24th, 2008 at 10:28 pm

  14. Gravatar Stacey says:

    Yippppppppeeeeeeeee! :D

    March 24th, 2008 at 11:12 pm

  15. Gravatar Ice Cream says:

    Yay, I came here looking for just this post. I was hoping things had turned around after seeing the photos you have of Jacqui gathering flowers.

    March 25th, 2008 at 1:20 am

  16. Gravatar Sophie from France says:

    This makes me so happy!!!!!!!!

    March 25th, 2008 at 10:32 am

  17. Gravatar LeeJo says:

    Oh, Praise God!

    March 25th, 2008 at 6:33 pm

  18. Gravatar Mima says:

    I am so pleased that she has come out of this episode, and hopefully she will have a nice clear run with no problems at all.

    March 27th, 2008 at 6:48 pm

  19. Gravatar Babyamore (Trish) says:

    I was away over Easter and missed so many friends posts. It is great that despite all your trials and Jacqui’s CVS you praise God.
    Blessings to you and your precious family.

    March 28th, 2008 at 7:03 am

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