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This blog is really about our kids, Jacqui and Kyle:

Jacqui is a wonderfully energetic and opinionated five-year-old. She was born with a rare birth defect known as a lymphatic malformation (LM) and has been through a lot in her young life. She had a trach until she was a year old, had surgery in New York to remove her LM with world renowned surgeon, Dr. Milton Waner (at age three), and still has a G-tube. She is a bright sunny soul in spite of everything.

Kyle is a thoughtful, and slightly reserved 2-year-old with a magical giggle and a wise-looking smile. He is clever and charming and a bundle of pure joy.

Our goal as parents: To treasure every moment and to raise our children to be extraordinary individuals.

Welcome to an inside view of our world!



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Guardian Of My Sanity…

March 30, 2008

MB

A Peek At My Bookshelf…

I felt him standing there before I saw him. I looked up to find Ken paused in the doorway observing me with an arched eyebrow. “You have that look,” he commented in a reproving tone.

“What look?”

He rolled his eyes at my deliberate obtuseness. “That look. You need to get out of here.”

“Whatever do you mean? I’m fine.”

“Uh, huh. Take a look in the mirror. I’m doing fine. You? Not so much.”

“Thanks. Thanks a lot.”

“I didn’t mean it that way, you twit.”

I touched my thumb to my nose while wiggling my fingers and crossing my eyes in his general direction. He wasn’t impressed. Or amused.

“You. Out. Now. Go breathe some fresh air. Or at least go haunt one of your old bookstores for the afternoon.”

I protested because we had both been up much of the night with Jacqui due to her recent CVS episode, “You need some time to yourself too…”

“I told you I’m fine. You, on the other hand, are not. You’ve been hovering over Jacqui for weeks now and you can either walk yourself to the door for a change of scenery, or I’ll boot you there.”

There was no arguing. I had neither the energy or motivation to go out — which was precisely why I was being escorted to the door. “Okay, okay… I’m going.”

And so I went. I thought about serving my time by sitting out in the driveway in the driver’s seat of our car, but that thought only lasted about a minute as I balked with the notion of being told what to do. Then common sense took over. No point in being belligerent to my own detriment. I had car keys and an afternoon all to myself. The driveway would not be the most brilliant use of my time.

I pulled out of the driveway with the thought of heading to the local Barnes & Noble book store, but then my car did a funny thing… It turned a different direction. I stopped at the grocery store, picked up a loaf of out-dated bread and headed towards the park. I fed the ducks and geese and then leaned back into a park bench and watched the clouds. I went for a walk. I strolled bare-headed down a riverside path as hail pelted cherry blossoms from the trees in a fluttering blizzard of pink. I walked until my fingers grew numb and I laughed when a hummingbird dive-bombed my path as I returned to my car. Good to know I hadn’t forgotten how.

My car meandered past sleepy shops and I stopped when I saw the sign of an old bookstore. I stepped inside and could feel my eyes lighting up from within. A cluttered shop, jammed near floor to ceiling with books. Doesn’t get much better than that. I parked myself in a dusty corner with an armful of aging yet timeless treasures: A collection of Dickenson’s poems in an unassuming dark green cover with faded, yet ornate end papers, a tattered calf-skin volume of Longfellow’s poetry with the words, “To my darling Jenny ~ 1897″ written lovingly on the fly leaf, a small red leather pocket volume with worn gilded edges and no title that fell open to a someone’s long-ago favorite words penned by Keats, and an obscure little collection of Oscar Wilde’s fairy tales with the cover loved threadbare. I spent the rest of my rare afternoon with my finds, most of them too costly to enjoy beyond the afternoon. But what a lovely afternoon it was!

I returned home after trading my pocket change for the tiny copy of Wilde’s tales, grateful and rested. Grateful for hummingbirds, clouds, and cherry blossom blizzards. Grateful for timeworn books and introspective afternoons. Grateful to be sharing my life with Ken, my very best and truest friend. Like Wilde’s “The Happy Prince”, his heart is generous — his first thoughts for the welfare of his wife, for his children. The guardian of my sanity who sends me off for a a solitary afternoon of soul-mending with a smile and a wink at his expense. Because he knows I will do the same for him.


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Are You Writing This Down??

December 1, 2007

SW

While Christmas shopping at the mall, Jacqui saw Santa sitting in his big velvet chair, chatting with children about Christmas wishes. We don’t make a big deal of Santa at our house, so I was a little surprised when Jacqui stopped in her tracks and exclaimed, “Mommmmmmmm! I muss go see Santa! I needta tell him somefing very ‘portant!”

“Are you sure?” I asked, eying the length of the line.

She placed a hand on a hip and crinkled her eyebrows, “Course I’m sure! I woon’ta said anyfing if I wasn’t!”

Well OK then. Off to the end of the line we went. As we waited, Jacqui wiggled about in anticipation like a Christmas puppy. “Is he da reely reel Santa?”

“What do you think?” I had answered variations of this question many times, but for some reason, Jacqui just loves to ask questions that she already knows the answer to. I’ve tried to interest her in other hobbies, but no. This one suits her just fine, thank you.

“I fink he’s jess preten an’ da reely reel Santa was Santy Nickles and was very nice to little boys an’ girls a reely long time ago. He’s probly in hebben now.”

“Why do you want to talk to a pretend Santa then?”

“Moooooommmm!! Dats more fun ’bout it! It’s jess fun to play preten, Mom. You telled me dat it’s good to maj-inate fings, ‘member?”

“Yes, so I did.”

Ken and I really struggled with what to do with the whole Santa thing. We basically decided to not make an issue of it and keep the focus of Christmas on Jesus where we believe it should be. Jacqui, however, is not easily put off by such things. She likes to ask question after question in ever increasing detail and somehow we just couldn’t bring ourselves to answer her inquisitiveness with “Why of course he’s real!” Instead, we told her the real story of St. Nicholas and explained why people like to remember the kind things that he did. It seemed to satisfy her curiosity and she deftly categorized the whole ‘Santa bringing presents’ issue as a fun and elaborate game of make-believe. I have no idea if we did the right thing here, because honestly, we are just making up most of this parenting stuff as we go along!

The line crept along and Jacqui became exponentially more excited until at last it was her turn and she bounded up into the unsuspecting mall Santa’s lap.

“What do you want for Christmas, little girl”

“Wot’s my name?”

“Ho, Ho, Ho! Why don’t you tell it to me?”

“If you’re da reely reel Santa you should know my name.”

Poor Santa didn’t look so good.

Jacqui arched an eyebrow and looked suspiciously at his whiskers. Fortunately for him we had already discussed that the pretend Santa’s beard was very real and she should not bother him about it, nor should she under any circumstances tug on it to see if it would come off. I prayed like crazy for the moment to pass without a major incident. Jacqui tilted her head back the other direction as she evaluated him. Finally she said, “My name’s Jacqui. You know how to spell it?”

Santa sat there looking like a stun-gun victim.

“J-A-C-Q-U-I. Dat’s howya spell Jacqui. Dat’s me.”

Santa coughed. “Well Jacqui, what would you like for Christmas?”

“Jacqui clapped her hands and giggled. She then began chattering at 120 miles an hour… “For Christmas I would like allotta fings! A Dizz-inny Princess Talkin’ Vannerty (vanity), A pink Fur-Berry, Da Fur-Real Pony, Dizz-inny Princess Dress-Up stuff, and A Real Lovin’ Baby… Are you writin’ dis down?? You’re jess a preten Santa so you shood mebbe write fings down so you don’t fergit dem. You do hab very nice white gloves though, I like ‘em a lot! Mommy an’ Daddy need toys for Christmas too an’ I will help dem play wif ‘em, OK? And don’t bring me a purple yo-yo. Dat’s Daddy’s job, not you. Now I needta tell you what Kyle wants for Christmas ’cause he’s too little to tell ‘ya…”

The poor pretend Santa sat there valiantly fighting off the impending migraine while contemplating the meagerness of his paycheck. Finally, Jacqui released her velvet and ermine-clad captive and bounced down from his much-relieved lap while calling over her shoulder, “Don’t fergit… No purple yo-yo’s! Dat’s Daddy’s job.”

The pretend Santa smiled and waved and motioned to one of his elves. Probably to schedule a pretend Santa break from all things pertaining to the North Pole.

I looked down at Jacqui and she was grinning ear to ear and skipping along with one hand in mine.

“Did you tell him the very important thing that you needed to?”

“Oh, yes! I telled him! Dat was fun Mommy! He’s not so very good at pretenning as me.”

Huh. I was completely stumped as to what had just happened and why. “So what did you tell him that was so important?”

She looked up at me with sparkles in her eyes and laughed, “Oh, I jess needed to tell him not to bring me a purple yo-yo for Christmas in case he was still pretennen’ to be Santa on Christmas cause it would hurt Daddy’s feelin’s if da preten Santa brought me Daddy’s present. Daddy said he would get me a yo-yo for Christmas an’ teeched me to do da yo-yo tricks!”

“So then why did you tell him all the other stuff if you knew he was just a pretend Santa?”

“Moooommm!! I all-reddy telled you! It’s jess fun to play preten an’ I’m a very good maj-inator. Dat’s more fun about it if you maj-inate fings.” And she grinned and gave another skip as she dove towards Ken through the crowd. “Dad! Don’t worry! I telled dat Santa not to bring me a purple yo-yo!”

Ten minutes later when we walked by Santa’s chair once more, he was nowhere to be seen. Perhaps he went to go write things down… like maybe a list of phone numbers from the Help Wanted ads…


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Gluten Free Gems: Ritz-Like Crackers

September 26, 2007

RC

Since I seem to have a cracker theme going on here (the absence of good tasting gluten-free crackers is a pet peeve of mine) I thought instead of a recipe, I would share with you one of my recent favorite finds. These Ritz-style crackers by Glutino are by far the best commercially prepared gluten-free cracker I have come across. They do state on the box that they make contain trace amounts of milk, casein, or soy, so if you are highly sensitive to any of these ingredients, they may not work for you. My daughter, Jacqui, is on an essentially GFCF diet, but her food sensitivities are of a more volume related nature and she is able to tolerate foods containing trace amounts of milk or casein.

These crackers are really quite good! Not quite as buttery as a Ritz cracker, but a pleasant flavor. Most importantly, they have that wonderful oh-so-elusive flaky texture. None of that rice cracker snap going on here! Jacqui would literally sit and eat an entire box if I let her, but they are a little too spendy for that. I was able to find them at a local specialty grocer’s for $3.79 a box. Most of the on-line sources are running at about a dollar higher.

That said, if you are craving something like this to have around as a luxury item, then they are everything they claim to be. They would be excellent with soups! My daughter loves them with Tofutti’s Better Than Cream Cheese. *Kid Friendly Tip* I tint the cream cheese orange with red and yellow gel food coloring, spoon it into a pastry bag with a wide fluted pastry tip and pipe it onto the crackers. Voila’ ! CF ‘Easy Cheese’ : )

If you are having trouble finding this product locally, they can be purchased on-line at glutenfree.com - $4.94 plus shipping for a 5.3 oz box.


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Gluten-Free Gems… Mock GFCF Goldfish Crackers

September 20, 2007

GF

One of the things I have had the hardest time with as a Mom with a child on a GFCF diet has been finding decent crackers. In the world of toddlers, Goldfish crackers top the list. Everywhere you go, they are offered at snack-time and their tempting bright color and fun shape always left my daughter in tears, wishing that she could have some too. I found several gluten-free recipes, but ultimately gave up on finding a good tasting version that was both gluten-free and casein-free, deciding to just come up with a GFCF version of my own. After much trial and error, I present to you my final version which Jacqui has pronounced “Super Yummy!” While they are not quite as cheesy in flavor as the originals, this recipe yields a pleasantly crunchy cracker with a great buttery taste and lightly cheesy flavor. Enjoy.

Mock GFCF Goldfish Crackers

1 1/2 cups white rice flour
1/2 cup tapioca starch
1 tsp baking powder
1 tsp xanthan gum
1 tsp salt
1/2 tsp garlic powder
3 packets Road’s End Organics Chreese Mix *Gluten-Free Dairy-Free Version*
**Note: At the Road’s End Organics link site you will need to select the GLUTEN-FREE version of the chreese packets in the second row***
1 cup vegetable based margerine, melted
1/2 cup firm sliken tofu
1/2 cup soy based sour cream substitute such as Tofutti’s Better Than Sour Cream
red and yellow gel or paste food coloring

Blend together dry ingredients: Flour, starch, baking powder, xanthan gum, salt, garlic powder, and Chreese packets.

Blend in silken tofu with a fork or pastry cutter

Mix in sour cream substitute and slowly add melted margerine, mixing until well blended.

Add red and yellow gel or paste food coloring to achieve desired color. Blend dough until color is uniform. Dough will be soft and sticky.

Divide dough into thirds.

Form dough into balls and flatten in between sheets of wax paper, wrap and chill for 2 hours or until firm and easy to handle.

Preheat oven to 400 degrees.

Roll out dough to 1/8 inch thickness on rice-floured surface.

Cut with mini-goldfish cutter mini goldfish cookie cutter.

Transfer to parchment or silpat lined cookie sheet, one inch apart, and prick each cracker with fork or toothpick.

Bake 10-12 minutes until crisp or very lightly browned - less if your crackers are very thin.

Store in airtight container for up to two weeks. Makes approximately 6 dozen crackers.

Modified from Bette Hagman’s ‘More From the Gluten-Free Gourmet’


**A few notes:

  • You may be able to find the Road’s End Organics products locally and avoid shipping costs. They are often stocked at Shaw’s, Stop & Shop, Earth Fare, and Wild Oats, or local health/nutrition stores or specialty grocery stores. My local specialty grocery store doesn’t usually stock the packets, but they special order it for me and I am still able to avoid shipping charges.**Be aware while shopping that Road’s End Organic’s makes both a Dairy Free version containing wheat, and a GF-Dairy-Free version of the cheddar style chreese mix. If you are on a GFCF diet like my daughter is, you will need to pay close attention and select the Gluten-Free version as the packaging is quite similar. The GF version is in the blue box. The dairy-free only version containing wheat is in the green box.**
  • The mini goldfish cutter is a little pricey at $7.95 plus shipping, but at least at our house, it was worth it. I actually purchased two of them and Jacqui loves to help cut out the crackers with me. Jacqui has a lot of oral feeding issues and this was a fun and successful way to engage her with food - with great results! It is also just really nice for her to be able to have something that looks and tastes like the snacks that all her little friends have. All in all, I consider the $7.95 well spent.
  • After about two weeks, the crackers start tasting a little tough and stale - even when packed in air-tight containers. We now make a half-batch at a time and it works out perfectly for us. Consider altering the recipe size to suit your own family.


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Gluten-Free Gems… Homemade GFCF Graham Crackers

September 13, 2007

GC

I have been getting quite a few query hits on my blog relating to gluten-free recipes and a number of emails with questions about gluten-free living at our house, so I thought I would start a little segment of my blog calledGluten-Free Gems’. Basically, it will consist of little tips or tricks I have been slowly picking up on toddler-friendly gluten free living . (I should note here that my daughter is also on a casein-free diet for her CVS , so anything I post will be both gluten and casein free).

So… whenever the whim strikes me, I will post either a recipe, a product find, or some little tip I have found useful. We’ll see how popular the topic is, and go from there. Just so you know, I don’t keep gluten-free recipes unless they pass taste tests by our non-gluten restricted family members, so everything you find here should taste great by any standard. If you have problems with any recipe, email me and I will do my best to help you trouble shoot. By popular request, my first post in this topic will be my recipe for gluten-free/casein-free graham crackers. If you would like to read the post that started it all, click here - enjoy!

(Note: Even though Jacqui didn’t eat the gluten-free graham crackers on our camping trip, she really does like them, usually eats them really well - and they are extremely good! She was just overwhelmed by the temptation of an un-attended box of the chocolate flavored Honey-Maids (must have gotten that choco-holic gene from me). My husband even likes this homemade version better than the boxed store brands. I actually have to hide them so he doesn’t eat the poor kid’s graham crackers!)

Better Than The Real Thing - Gluten-Free Casein-Free Grahams

1/3 cup shortening or margarine
3/4 cup brown sugar
2 tsp. vanilla
2/3 Cup Bean Flour
1/3 cup Sorghum Flour,
1 cup Tapioca Flour
1 cup Cornstarch
1 Tsp Baking Powder
(3 cups Pamela’s Ultimate Pancake and Baking Mix may be substituted for the previous 5 ingredients if you do not need these to be casein-free. Pamela’s Ultimate Pancake and Baking Mix contains buttermilk)
1 tsp xanthan gum
2 tsp cinnamon
1/2 tsp. ginger
1/4 tsp nutmeg
1/2 tsp salt
1/2 cup rice milk
3-4 Tbsp Cornstarch for rolling
1/3 cup granulated sugar for sprinkling

Preheat oven to 350 Degrees.

Cream together shortening or margerine with brown sugar and vanilla in a large bowl.

Mix in spices, salt and xanthan gum.

Add Pamela’s Mix (or substitute flour mixture) one cup at a time, blending in well with a fork or pastry cutter until all 3 cups have been incorporated.

Add rice milk (may substitute water, soy milk, etc.) a little at a time. You may not need the entire 1/2 cup. Add just enough to make a cookie dough consistency (will be quite sticky) .

Separate dough into tennis-ball size portions, flatten, wrap in wax paper and chill 2-3 hours until firm.

Working with one section of dough at a time, roll out on cornstarch dusted surface to a thickness of 1/8 inch. Cut with 3- 1/4 inch size fluted round cutter and transfer to silpat or parchment lined baking sheet with cornstarch dusted pancake turner or spatula. (You can use a cookie sheet sprayed lightly with cooking spray, but they do cook more evenly on the silpat or parchment when you are going for a crisper cracker.) I place 8 cookies per sheet.

Prick each cookie 4-6 times with a fork and sprinkle with granulated sugar.

Bake at 350 degrees for 30 minutes at 350 degrees or untill edges have lightly browned. the longer they bake, the crisper the cracker and they do harden some as they cool. You may have to experiment a little to find your preference in baking time. (We like ours super-crunchy and actually bake them for around 35-40 minutes)

Store in air-tight container - perfect for S’mores!

Makes about 2 1/2 dozen

Adapted from combination of Pamela’s Mix Graham Cracker recipe and Bette Hagman’s Graham Cracker recipe from ‘The Gluten-Free Gourmet Bakes Bread’.

Note: I think they do turn out a little better (a little lighter and flavor is slightly different) with the Pamela’s Mix - plus the mix makes excellent pancakes too. You may be able to find the mix less expensively than the link I provided at your local specialty grocer’s. The mix also comes in 64 oz bags, which is how I purchase mine. I use it for flour bases for everything from pancakes, to muffins, to crackers, to breads. It really is an excellent mix! This recipe also works well substituting 1/4 cup honey for the brown sugar, although they will not be as sweet. For a less sweet cracker you can also cut the sugar down. The original recipe called for 1/2 cup of granulated sugar.

Special Thanks to Jordan at ‘MammaBlogga’ for challenging me to expand my writing topics with ‘this post’.






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