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In The Life of A Child, all content and images unless otherwise noted © 2006 - 2008


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This blog is really about our kids, Jacqui and Kyle:

Jacqui is a wonderfully energetic and opinionated five-year-old. She was born with a rare birth defect known as a lymphatic malformation (LM) and has been through a lot in her young life. She had a trach until she was a year old, had surgery in New York to remove her LM with world renowned surgeon, Dr. Milton Waner (at age three), and still has a G-tube. She is a bright sunny soul in spite of everything.

Kyle is a thoughtful, and slightly reserved 1-year-old with a magical giggle and a wise-looking smile. He is clever and charming and a bundle of pure joy.

Our goal as parents: To treasure every moment and to raise our children to be extraordinary individuals.

Welcome to an inside view of our world!



Finding Courage Through Sharing ~ Coming To You April 24, 2008!

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Picky Eater's Club ~ Coming To You May 8, 2008!

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Childlife's Singing In The Rain Award ~ Coming To You April, 2008!

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This Is Why We Don’t Have Nice Things!!!

May 9, 2008

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Hmmm… I wonder who could have possibly done this? (Note to Miss Jacqui: Generally not the best move to sign the scene of the crime…)


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Wordless Wednesday — No One Understands The Tortured Soul Of An Artist…

May 7, 2008

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For More Wordless Wednesday Posts… CLICK HERE and HERE.


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Wordless Wednesday… Portrait Of A Lens Error

April 30, 2008

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For More Wordless Wednesday Posts… CLICK HERE and HERE.


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Ten Minutes Of Jungle Book… As Narrated By Jacqui

April 11, 2008

DBM

Look! Dair’s Bagheera! He’s a kinda wild kitty, huh?

Look! Look at dat basket! Know what’s innit? A baby! Idn’t dat silly?

Lissen what dat baby says… why’s he say “Ahhhhh?” Does he fink Bagheera’s a dentist?

What kinda kitty is Bagheera?

Is dat da kinda kitty dat sleeps all day and wakes up all night?

Dat means he’s nocky-turdle, huh? (nocturnal)

Why’d he bump dat baby basket and make da baby cry? He’s not posed to do dat, huh?

Dat’s da mommy wolf, huh?

Look! Look at doze little baby wolfs waggin’ dair tails? Aren’t dey so very precious?

Look! Look, Mom! Da wolfs are all growed up wif Mowgli now!

Dat sure was fast, huh?

Dey’re sclurpin’ Mowgli wif slobbery kisses! Idn’t dat silly?

Boy, dey’re reely not shy, aren’t dey?

Dis is too loud now. TOO LOUD!! Let’s turn it down! Dat’s bedder.

Wat’s a ‘man billage’ (village)

Do only mans lib dair, or do girls lib dair too?

Why is Mowgli wearin’ a orange diaper? He’s not a baby!

Wow, dey’re reely high up in dat tree, aren’t dey?

Look! Dair’s Kaa! He’s a slipperdy snake. Look at his loopidy eyes!

Look at my eyes… are dey loopidy too wen I do dis?

Kaa is noddy, right?

Why’s he squishin’ Mowgli?

Look! Look wat he’s doin’ wif his eyes!

Ha, ha, ha, ha! Look wat he’s goin’ ta do… Keep your eye on ‘im! Ha, ha, ha, ha! Wadn’t dat funny wif da knot in his tail? Ha, ha, ha, ha, ha! Why you not laughin’?

Jungle’s are dangerous, huh?

A jungle ‘venture is fraught wif danger! Dat’s wat Rabbit says on da Heffalump Movie.

Wat’s fraught mean?

Now. Ask me again why it is that we never go to the movies?

kid movies


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The Sun May Come Out… Tomorrow…

April 2, 2008

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Image Courtesy Istock Photo

We’re starting to see the clouds parting on this last CVS episode… little glimmers of Jacqui peeking through the fog now and then.

During one of her brief ‘awake times’ today, she mentioned that she might be interested in eating tomorrow…

“Mommy… I fink maybe I will like to eat a snack tomorrow.”

I peered down at the sleepy head in my lap and smiled. “Well, that would be great! What do you think you would like to have for a snack?”

She arched an eyebrow and gave me a fleeting glimpse of a sleepy dimple. “Hmmmm… how ‘bowwwwwwt… SUSHI!!”

“Sushi??” I was completely thunderstruck. The word ’sushi’ is never uttered at our house. We’re not sushi people. We’re not any kind of seafood people. Not even fish-stick people. Maybe a-tuna-sandwich-now-and-then people, but definitely not sushi people.

She flashed a toothy grin up at me and repeated, “SUSHI!”

“Do you even know what sushi is?”

A comical attempt at a serious scowl crinkled her brow as she answered, “Course I do. Itsa kinda not-cooked fishy. Probly reely slimy. Don’t worry, it won’t make me gag too much. Yummy!” She made a loud slurping noise for emphasis.

I just looked at her in stunned and bewildered silence.

“You’re ‘posed to squish your eyebrows all up like you’re mad and say, ‘Ha, ha. Very funny’ “.

I was completely lost. “What??”

She sighed in dramatic frustration. “I was bein’ sour-catty, Mom.”

I rubbed my temples trying to locate a fragment of the conversation that I could make sense out of. “You’re what?”

“Mooooom! Sour-catty… you know… it’s like a not-funny joke. Wen sumbuddy is bein’ sour-catty, you’re all-ays ‘posed to say, ‘Ha, ha. Very funny.’ Like dat. But only don’t laugh. Now you say it.’

“Sarcastic? You’re being sarcastic?? For crying out loud — you’re five…”

“Mom. Pay da tenshun. Say, ‘Ha, ha. Very funny.’ ”

“Ha, ha. Very funny.”

“Dat’s better. Sometimes you take a very long time to figger thins out, doncha?”

… Ha, ha. Very funny.


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