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This blog is really about our kids, Jacqui and Kyle:

Jacqui is a wonderfully energetic and opinionated five-year-old. She was born with a rare birth defect known as a lymphatic malformation (LM) and has been through a lot in her young life. She had a trach until she was a year old, had surgery in New York to remove her LM with world renowned surgeon, Dr. Milton Waner (at age three), and still has a G-tube. She is a bright sunny soul in spite of everything.

Kyle is a thoughtful, and slightly reserved 2-year-old with a magical giggle and a wise-looking smile. He is clever and charming and a bundle of pure joy.

Our goal as parents: To treasure every moment and to raise our children to be extraordinary individuals.

Welcome to an inside view of our world!



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Picky Eaters Club — May 2008 Edition

May 8, 2008

Picky Eaters Club

For our first edition here, let’s introduce ourselves, and our picky eater (or eaters). Then in whatever format you choose, share one tip for a success you’ve had with your picky eater, or ask for tips for dealing one challenge that you’ve been facing with your picky eater.

I’ll try to include a tip both for the standard picky eater and for the picky eater with additional medical challenges in each of my posts. (For Picky Eater’s Club information click here.)

Hello there! Have a picky eater or two (or three…)? Well, join the club! I’m Michelle and I’ve got two of them, Jacqui is five, and Kyle just turned two. Jacqui, on top of being naturally picky, had a ton of early medical issues that further enhanced her picky-ness through sensory and food texture issues and the like. Kyle isn’t naturally picky, but he has severe reflux that we finally have pretty well controlled with medication. The reflux has caused him to balk at certain flavors and textures so I have some picky-ness issues with him too. Our house is just tons o’ fun!

I hear all the time from moms that they just can’t get their kiddos to eat, so I thought why not pool our experiences here and outsmart the little rascals! Here are my tips for the week, one for the standard picky eater and one for dealing with extra medical challenges:

My Eating Jar/Good Job Jar System…

EJ

Once I finally got Jacqui eating, I began looking for a way to get her to self-motivate during meals. It gets so tiring to sit there saying “take another bite… take another bite…” What I came up with is a pretty simple little system that cashes in on her fascination with piggy banks. I went to our local Dollar Tree store and picked up a duckie toothbrush holder, a wicker basket, three bags of craft gemstones and a larger jar with a stopper. Six dollars total.

The large jar is her ‘Good Job Jar’. She gets gemstones for doing things well: Keeping her room clean, making her bed, using polite words, putting her coat and shoes away when we first come home — that sort of thing. She loses stones for yelling, messing up her room, bickering with her brother, etc. When the jar is all full (takes her about three months on average) she gets a special outing of her choice. We’ve gone to a local amusement park, the beach, the aquarium. She’s currently saving to go to the zoo.

The little toothbrush holder jar is her ‘Eating Jar’. She gets a gemstone for each food item finished to a parent’s satisfaction and two gemstones for trying a new food for the first time. She gets three stones at the end of a meal if we don’t have to remind her to keep eating. No stones are ever taken out of the eating jar. When it is full she exchanges it for 30 minutes of computer time, a sheet of stickers, or some other reward we have agreed on. She typically fills up her ‘Eating Jar’ twice a week. We do have to frequently change the reward or she gets bored.

The other part of the system is a timer. If she is being particularly belligerent, a set amount of a type of food that should easily be able to be finished in five minutes is set aside on her plate. The timer is set for five minutes and if she doesn’t eat it before the timer goes off, she loses a stone out of the ‘Good Job Jar’ for not following directions. The timer is set for another five minutes and so on. It usually only takes one or two rounds of this to get her focused back on earning stones for the ‘Eating Jar’ instead of losing stones from the ‘Good Job Jar’.

This little trick along with some others I’ll share later have saved us a lot of mealtime headaches. Hope it can help someone else out as well — bottom line is never give up and keep looking for unique ways to motivate your child.

Dealing With Medical Related Eating Issues…

DW

So let’s begin at the beginning here. You’re a new mom, with a baby in the NICU on tube feedings. Maybe they’re a preemie, maybe they’re on a ventilator. Whatever the case, not every NICU is going to tell you how important it is to maintain your baby’s sucking reflex. So I’m going to tell you… if it is in any way an option, it’s super important to maintain your baby’s sucking reflex. If you can work on breastfeeding with your baby, do it. Even if your baby is on tube feedings, come in before feedings and work on breast feeding. Be aware that there are tons of aids for complications with breastfeeding such as Supplemental Nursing Systems that you can talk to a lactation consultant at the hospital about and get help with. If your baby needs to bottle feed but has special complications with a bottle there are specialized bottles such as the Haberman Feeder with adjustable flow rates.

If your baby cannot drink anything by mouth, it’s still important to work on maintaining your baby’s sucking reflex if you can. I know that there is a lot of negative info out there about pacifiers, but this is one situation where a pacifier becomes a very good thing. Particularly if your baby is on a ventilator. When Jacqui was on a ventilator for six weeks as an infant, I kept a pacifier going with her as much as I could while she was awake. Most hospitals actually stock pacifiers and the majority of hospitals stock the Soothie brand pacifiers. There are several nice things about these pacifiers: Babies who often refuse other pacifiers will frequently accept a Soothie, the hub of the Soothie can be cut with scissors to fit around a ventilator tube, and they can be ordered attached to cute little stuffed animals (like Jacqui’s old duckie pictured above) called Wubbanubs, which can help keep the pacifier in place for your baby when you are not able to be in the NICU.

Maintaining your baby’s sucking reflex sets you up for an easier time transitioning to oral feedings later. If the sucking reflex isn’t maintained and your baby isn’t given any positive oral experiences, they are at high risk for developing an oral aversions: Low or zero tolerance for anything in or near the mouth, which can make the transition to oral feeding extremely difficult. If at all possible, encourage your baby to take a pacifier during any bolus tube feedings to help your baby associate sucking with the sensation of his or her stomach filling during a feeding. If you are able to do this, it can make the transition to breastfeeding or bottle-feeding so much easier. Even if your child doesn’t eat by mouth until much later (Jacqui wasn’t off tube feedings until age four), making sure your baby has some positive oral experiences while in the NICU will make everything from brushing teeth to learning to eat that much easier. Nurture that sucking reflex any way you can, if you have the option.

What About You? What picky eater tips or questions do you have? I’m looking forward to hearing them!


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Calling All Parents Of Picky Eaters!

May 1, 2008

Picky Eaters Club

The Picky Eater’s Club is officially ready for launch!

This monthly blog carnival style tips feature will soon be hosted at In The Life Of A Child on the second Thursday of every month. Are you ready? Mark your calendars, because the very first edition begins Thursday, May 8th!

What’s that, you say? You’ve got some questions? Well, let’s hear them!

So, what is this Picky Eater’s Club that I keep hearing about?

The Picky Eater’s Club is an opportunity for parents to share tips on how they have gotten their picky eaters to eat, to solicit advice from other families who have had successes, and to otherwise commiserate and encourage each other as parents in the challenges of getting our picky little kiddos to eat something other than ice cream and chicken nuggets. It’s also intended to be a resource for parents facing extreme eating challenges with a child. Ever hear of feeding clinic? Have a kid on a G-tube that you are trying to get to even tolerate having food in the same room with them? Welcome. You’ve come to the right place. The entire spectrum of picky-ness is welcome here - whether you just wish you could get your child to eat a vegatable now and then, or you would be ecstatic if your child would allow anything near their mouth without the aid of general anesthesia, this is the place for you. Together we can accomplish great things!

So, what’s your story?

Are you sure you want to hear it? Well, ok… My daughter has both severe reflux and a rare condition known as cyclic vomiting syndrome, or CVS (Well… among other things). When she was two weeks old, her windpipe collapsed and she spent the next six weeks on a ventillator. A trach and G-tube were placed and it was another three weeks before we brought her home. My husband and I simultaneously battled to attempt to control her reflux and interest her in eating by mouth through endless hours in feeding clinic and therapy at home. It was a long process. And that is the understatement of the century. At eighteen months old she had a Nissen fundoplication surgery to prevent her constant vomiting. It was another seven months until she was additionally diagnosed with CVS and another 9 months before we learned how to manage that diagnosis. She was four years old before we successfully weaned her off tube feedings and she still has intermittent tube feedings during her CVS episodes. And now we are additionally dealing with the typical challenges of a picky eater. So let’s just say I’ve been around the dining table a few times. I’m learning new ideas from ingenious parents on this subject nearly every day though. And I’m looking forward to learning even more from each of you… and sharing with you some of my hard learned tricks for getting picky kiddos and children with extreme medical challenges to eat as well.

How is this going to work?

On the first of every month, I will post a topic for the month so you can start working on your post if you choose to participate. Then on the second Thursday of the month, come back here and you will find a post entitled ‘Picky Eaters Club ~ May 2008′, or whatever the current date is. The first part of the post will contain my post contribution and at the end of the post you will see a little “Mr. Linky” box that looks like this:

LW

In the first blank in the box, enter your name or your screen name. In the second blank box, enter the URL (Uniform Resource Locater, or web address) of your post. This is different from the web address of your blog. To find the web address of your post, simply click on the title of your post in your blog then look up at the top of your screen in that first really long white box up there. The URL of your post should start with “http://”. Copy that whole line and paste it into that second blank in the box at my place. Then click enter. Your link will now show up in my post. Note that it will say “delete link” next to your name, but don’t worry… you are the only one who can see the “delete link” next to your name. Since you are the author of the link, it gives you the option to delete what you just posted if you choose to. Finally, scroll down and leave a comment with anything you have to say (hopefully nice) about my post and you can leave a brief note about your post there as well, if you like. Some people like to leave a link to their post in the comment too, and you are welcome to do so. Then go start clicking on some of the other great posts that start showing up and share a few tears, hugs or a good laugh. Learn something new, share a recent breakthrough, find the strength to face another month of breakfast battles. Together we can accomplish great things!

Are there any rules?

Of course there are! Now what kind of a mom would I be if there weren’t any rules?

:-j

(Don’t worry though… they’re pretty straightforward.)

1. Please keep in mind when you are writing posts for Picky Eater’s Club, that In The Life Of A Child is “family friendly” blog and I work very hard to keep it that way. I reserve the right to remove links to posts which include offensive or inappropriate language, or those containing rude, or objectionable content. I will always make an effort to contact the author of such a post, refer them to the participation rules, notify them that their link has been removed, and offer them the opportunity to reformat their post for re-submission.

2. Please mention Picky Eater’s Club in your post, and publish a link back to my master list here at In The Life Of A Child. Please make sure you link specifically to the URL for my Picky Eater’s Club post for that month and not just to my home page.

3. You are most welcome, and I encourage you to publish the button code provided below in your entry post and/or your sidebar, but it is not a requirement. It just helps spread the word so that more parents will be interested in joining in. (You’ll have my undying gratitude!)

Picky Eaters Club

Get The Code For The Picky Eater’s Club:

(Just copy the code below and paste into your post or sidebar template)

If you need more detailed help on how to add images to your post, click here.

4. Please only leave a link if you have written a post specifically for Picky Eater’s Club. Empty links, spam links or links that are off topic will be deleted.

5. Please link specifically to your Picky Eater’s Club post, not to the front page of your blog. This is called a permalink and you can click here for an explanation of how to set one up and why this is important.

6. I prefer to keep things simple, with In The Life Of A Child as the only home page for Picky Eater’s Club. Please do not host your own “Mr. Linky” for Picky Eater’s Club at your site.

What is the topic for May?

After May, I will be posting the topic for the month on the first of each month, but you get to see it early this time. For our first edition here, let’s introduce ourselves, and our picky eater (or eaters). Then in whatever format you choose, share one tip for a success you’ve had with your picky eater, or ask for tips for dealing one challenge that you’ve been facing with your picky eater. I’ll try to include a tip both for the standard picky eater and for the picky eater with additional medical challenges in each of my posts. Click on the “Subscribe” button in the upper left corner of my blog and you’ll make sure you never miss an update. Are you ready to do this? Good! Then start working on that post, spread the word, and we’ll see you back here on May 8th!

And if you are the parent of a child with medical challenges, check out my Finding Courage Through Sharing Blog Carnival coming to you on the last Thursday of every month, beginning April 24th!


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Picky Eater’s Post Archive

April 2, 2007

Picky Eaters Club

There are no archived posts at this time. The first edition of the Picky Eater’s Club will be May 8th, 2008


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