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This blog is really about our kids, Jacqui and Kyle:

Jacqui is a wonderfully energetic and opinionated five-year-old. She was born with a rare birth defect known as a lymphatic malformation (LM) and has been through a lot in her young life. She had a trach until she was a year old, had surgery in New York to remove her LM with world renowned surgeon, Dr. Milton Waner (at age three), and still has a G-tube. She is a bright sunny soul in spite of everything.

Kyle is a thoughtful, and slightly reserved 2-year-old with a magical giggle and a wise-looking smile. He is clever and charming and a bundle of pure joy.

Our goal as parents: To treasure every moment and to raise our children to be extraordinary individuals.

Welcome to an inside view of our world!



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Imagine… A Bigger Prize Package!!

May 14, 2008

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So just a couple days into this benefit for Rhett and Parker, and we have some volunteers to make this even bigger! If you want to read about the details of the benefit and see my original four drawings, CLICK HERE.

First, the stunning, most fabulously wonderful Ursula of The Daily Drool has offered to add a gorgeous set of two of her lovely photograph prints, each in 5×7’s matted to an 8×10 size to the prize package: A monarch caterpillar and a lovely monarch butterfly…

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Next, the incredibly generous and talented Karen of Beyond Understanding has offered an autographed copy of her new novel, One Sister’s Song…

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And then there was Jacqui…

“Mommy, I wanta do artist drawings to help doze boys who’s very sick too.”

“Ok, why don’t you draw them each a picture and we’ll see if we can mail them to Rhett and Parker.”

“Nooooooooooooooooo!!!”

“No?”

“No! I needta do drawings in picher frames jess like you so you can put dem on da ‘pewter to help dem jess like yooooooooouuuuuu!”

“But, Jacqui…”

“It’s portent Mom!”

“But we don’t have any more picture frames…”

She handed me the phone with a grin, “Oh, dat’s easy… call Daddy an tell ‘im we need some more!”

I dialed while she giggled with glee and hopped up and down.

“OK,” the budding young artist declared while clapping her hands together like an authoritative production manager, “Now I need some paper.”

I handed her some paper off the computer printer. She scowled. “What?” I asked.

“Dat’s not gonna work! I need reely reel artist paper to be an artist, Mom!”

I cringed as she eyed my sketch pad. Then I sighed. What better use could there possibly be for a sheet of quality artist paper? None. I started to tear off a sheet as she shook her head and held up four fingers. Apparently she had a series in mind.

“I’m gonna do four pichers… jess like you!”

I handed over my sketch pad and she nearly burst with glee as she ran from the room to start her project. The rest of the day was spent making her drawings ‘just so’. The end result was this priceless set which I honestly am going to have a very hard time parting with…

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They are all 5×7’s and the first one is a kitty, the second is either a tiny unicorn and a flower or a regular sized unicorn and a giant flower — I’m not sure which (”If you don’t know I’m not gonna tell you, Mom!”), the third is a fish, and the fourth (my favorite) is a bunny. All lovingly hand-drawn by Jacqui.

She asked me tonight as I tucked her in, “Mom? Are doze boys very sick like me, wen I was in da hoz-pittle and couldn’t breave so very well?”

“Yes, Sweetie. Parker has a trach just like you did and Rhett has had a hard time breathing too.”

“Do you think my pichers will help pay da doctors so dey will be all bedder very soon?”

“Yes, Sweetie. I’m sure of it.” And she pulled the covers up with a giggle.

“I’m so very glad, Mommy.”

Me too. I’m so very glad for all of you who are stepping up to help these lovely families. Thank you!

Drawing Details:

At the end of the month, I will host a giveaway drawing with a winner randomly selected from the names of everyone who donates $5.00 to the Hands Helping Children Paypal account I have created to benefit these families. For every $5.00 you donate you will get one chance in the giveaway drawing to win the print set (and Ursula’s photograph set, Karen’s autographed novel, and Jacqui’s print set) — just send me an email or leave me a comment to let me know you’ve donated and how many entries you qualify for in the drawing. At the end of the month, the contents of the Paypal account will be split equally between Rhett and Parker’s families to help provide them with some much needed financial relief. To donate, click the button below, or send a Paypal payment to handshelpingchildren(at)gmail(dot)com.

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or CLICK HERE to donate.


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Vintage Jacqui… Where’s Da Budderfly?

May 1, 2008

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From about this time last year…

A bright spring morning and Jacqui greeted me with even more than her usual enthusiasm…

“Mom! I finded somethin’ when I was playin’ in da backyard yesti-day!”

“Oh, really? What did you find?”

“A crista-list!!”

“A what?”

“I said, Uh…CRIS…DA…LIST!! It’s kinda like another name for a kuhtoon, Mom.”

“Oh, You mean a chrysalis? A cocoon?”

“Dat’s wat I said. You needta pay datenshun wen peeple’s talkin’, Mommy.”

“I was paying attention. How do you know what a chrysalis is?”

“Oh, Mom. Most evvybuddy knows dat.”

“Huh. Interesting… ”

“Yes, dat’s wat I say - ‘innerestin!’ Soooo… I peeked in it!”

“You what?”

“Mooooooommm! You needta lissen! I said, I…PEEKED… IN…SIDE…DA…CRIS….DA…LIST!!”

“You did? What was inside?”

Her shoulders drooped and she shrugged in disappointment, “Dere was no budderfly innit.”

“There wasn’t?”

“Nope. I looked and I looked, and I think-ded, ‘Where’s da budderfly?’ I think-ded like dis ‘THINK, THINK, THINK’ like Pooh does (tapping her forehead), but I jess didn’t find her ennywhere. She’s jess missin’ I guess.”

“Was there a caterpillar inside?”

“Nope. Just green squishy stuff.”

“Oh dear.”

“Wat you mean when you say dat, ‘Oh dear?’ ”

“I think the green squishy stuff is your caterpillar. That is, it was your caterpillar before you peeked inside.”

“WHAT??? Who squished my caterpillar Mom?!!?”

My little future entomologist…


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These Have I Loved…

April 20, 2008

BY6

The beauty of childhood curiosity coupled with mischief,

BY4

Backyard giggles,

Bright pink boots — whimsically matched with sweaters and tutu’s,

BY3

Angelic smiles, coaxed into being by wildflower discoveries,

BY1

Dandelion gardens arduously planted by muddy little fingers,

BY8

Slides and skinned knees,

BY9

Swings and sunlit smiles,

BY5

The happy thunk of child-sized boots,

Running for no other purpose but for the joy of running,

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The stalking of elusive ladybugs,

BY7

The magic of a five-year-old…

Becoming invisible just because she believes it’s possible.

Inspired by the lovely poetry of Rupert Brooke and the beauty of all that is Jacqui

For more Best Shot Monday photos, click button below…

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Best Shot Monday… All Aboard The Birthday Train!

April 14, 2008

Best Shot Monday

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Counting Little Blessings…

April 9, 2008

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Kyle: “Wun-fee-fibe-nigh…TEN! (claps hands) ‘Ray!! Bwass-awv!

Jacqui: “No, Kyle. Dat’s how you don’t do dat. Like dis: “Ten, nine, eight, seven, six, five, four, three, two, one… blast off! Like dat. Try ‘gain.”

Kyle: “Wun-fee-fibe-sebin-TEN-BWASS-AWWWV! DEEEE-ENNNNN! Gackie shush!

Jacqui: “Kyle, don’t tell me to shush. Dat’s not polite and you’ll make Emily sad. I’m jess tryin’ ta help you not count all wrong. Count downs start wif ten, not one. An’ you missed a whole buncha numbers. You bedder start over… Ten, nine…

Kyle: “Wunfeeseben…TEN! Bwass-AWWWV! (Tucking chin and glaring) AWWW DUNNN GACKIE!!

Jacqui: “Crabby boy. Summday you’ll wish ya lissend to me. Don’t ebber say I din’t try ta tell ya.”

Kyle: “THHHHBBBBBBBT!!!”

Jacqui: (looking to me with an appalled gasp) Well you know Mom, he’s not goin’ ta be very pop-lar in play groups wif dis sorta nonsense. Emily will be soooooo disda-poin-ed!

And so my day starts… with a smile in my heart for my silly, funny little kiddos. Each of them a blessing.

If you’re new here and wondering what Jacqui was talking about with regards to Emily, click here.


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