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This blog is really about our kids, Jacqui and Kyle:

Jacqui is a wonderfully energetic and opinionated five-year-old. She was born with a rare birth defect known as a lymphatic malformation (LM) and has been through a lot in her young life. She had a trach until she was a year old, had surgery in New York to remove her LM with world renowned surgeon, Dr. Milton Waner (at age three), and still has a G-tube. She is a bright sunny soul in spite of everything.

Kyle is a thoughtful, and slightly reserved 1-year-old with a magical giggle and a wise-looking smile. He is clever and charming and a bundle of pure joy.

Our goal as parents: To treasure every moment and to raise our children to be extraordinary individuals.

Welcome to an inside view of our world!



Finding Courage Through Sharing ~ Coming To You April 24, 2008!

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Picky Eater's Club ~ Coming To You May 8, 2008!

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Childlife's Singing In The Rain Award ~ Coming To You April, 2008!

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Picky Eaters Club — May 2008 Edition

May 8, 2008

Picky Eaters Club

For our first edition here, let’s introduce ourselves, and our picky eater (or eaters). Then in whatever format you choose, share one tip for a success you’ve had with your picky eater, or ask for tips for dealing one challenge that you’ve been facing with your picky eater.

I’ll try to include a tip both for the standard picky eater and for the picky eater with additional medical challenges in each of my posts. (For Picky Eater’s Club information click here.)

Hello there! Have a picky eater or two (or three…)? Well, join the club! I’m Michelle and I’ve got two of them, Jacqui is five, and Kyle just turned two. Jacqui, on top of being naturally picky, had a ton of early medical issues that further enhanced her picky-ness through sensory and food texture issues and the like. Kyle isn’t naturally picky, but he has severe reflux that we finally have pretty well controlled with medication. The reflux has caused him to balk at certain flavors and textures so I have some picky-ness issues with him too. Our house is just tons o’ fun!

I hear all the time from moms that they just can’t get their kiddos to eat, so I thought why not pool our experiences here and outsmart the little rascals! Here are my tips for the week, one for the standard picky eater and one for dealing with extra medical challenges:

My Eating Jar/Good Job Jar System…

EJ

Once I finally got Jacqui eating, I began looking for a way to get her to self-motivate during meals. It gets so tiring to sit there saying “take another bite… take another bite…” What I came up with is a pretty simple little system that cashes in on her fascination with piggy banks. I went to our local Dollar Tree store and picked up a duckie toothbrush holder, a wicker basket, three bags of craft gemstones and a larger jar with a stopper. Six dollars total.

The large jar is her ‘Good Job Jar’. She gets gemstones for doing things well: Keeping her room clean, making her bed, using polite words, putting her coat and shoes away when we first come home — that sort of thing. She loses stones for yelling, messing up her room, bickering with her brother, etc. When the jar is all full (takes her about three months on average) she gets a special outing of her choice. We’ve gone to a local amusement park, the beach, the aquarium. She’s currently saving to go to the zoo.

The little toothbrush holder jar is her ‘Eating Jar’. She gets a gemstone for each food item finished to a parent’s satisfaction and two gemstones for trying a new food for the first time. She gets three stones at the end of a meal if we don’t have to remind her to keep eating. No stones are ever taken out of the eating jar. When it is full she exchanges it for 30 minutes of computer time, a sheet of stickers, or some other reward we have agreed on. She typically fills up her ‘Eating Jar’ twice a week. We do have to frequently change the reward or she gets bored.

The other part of the system is a timer. If she is being particularly belligerent, a set amount of a type of food that should easily be able to be finished in five minutes is set aside on her plate. The timer is set for five minutes and if she doesn’t eat it before the timer goes off, she loses a stone out of the ‘Good Job Jar’ for not following directions. The timer is set for another five minutes and so on. It usually only takes one or two rounds of this to get her focused back on earning stones for the ‘Eating Jar’ instead of losing stones from the ‘Good Job Jar’.

This little trick along with some others I’ll share later have saved us a lot of mealtime headaches. Hope it can help someone else out as well — bottom line is never give up and keep looking for unique ways to motivate your child.

Dealing With Medical Related Eating Issues…

DW

So let’s begin at the beginning here. You’re a new mom, with a baby in the NICU on tube feedings. Maybe they’re a preemie, maybe they’re on a ventilator. Whatever the case, not every NICU is going to tell you how important it is to maintain your baby’s sucking reflex. So I’m going to tell you… if it is in any way an option, it’s super important to maintain your baby’s sucking reflex. If you can work on breastfeeding with your baby, do it. Even if your baby is on tube feedings, come in before feedings and work on breast feeding. Be aware that there are tons of aids for complications with breastfeeding such as Supplemental Nursing Systems that you can talk to a lactation consultant at the hospital about and get help with. If your baby needs to bottle feed but has special complications with a bottle there are specialized bottles such as the Haberman Feeder with adjustable flow rates.

If your baby cannot drink anything by mouth, it’s still important to work on maintaining your baby’s sucking reflex if you can. I know that there is a lot of negative info out there about pacifiers, but this is one situation where a pacifier becomes a very good thing. Particularly if your baby is on a ventilator. When Jacqui was on a ventilator for six weeks as an infant, I kept a pacifier going with her as much as I could while she was awake. Most hospitals actually stock pacifiers and the majority of hospitals stock the Soothie brand pacifiers. There are several nice things about these pacifiers: Babies who often refuse other pacifiers will frequently accept a Soothie, the hub of the Soothie can be cut with scissors to fit around a ventilator tube, and they can be ordered attached to cute little stuffed animals (like Jacqui’s old duckie pictured above) called Wubbanubs, which can help keep the pacifier in place for your baby when you are not able to be in the NICU.

Maintaining your baby’s sucking reflex sets you up for an easier time transitioning to oral feedings later. If the sucking reflex isn’t maintained and your baby isn’t given any positive oral experiences, they are at high risk for developing an oral aversions: Low or zero tolerance for anything in or near the mouth, which can make the transition to oral feeding extremely difficult. If at all possible, encourage your baby to take a pacifier during any bolus tube feedings to help your baby associate sucking with the sensation of his or her stomach filling during a feeding. If you are able to do this, it can make the transition to breastfeeding or bottle-feeding so much easier. Even if your child doesn’t eat by mouth until much later (Jacqui wasn’t off tube feedings until age four), making sure your baby has some positive oral experiences while in the NICU will make everything from brushing teeth to learning to eat that much easier. Nurture that sucking reflex any way you can, if you have the option.

What About You? What picky eater tips or questions do you have? I’m looking forward to hearing them!


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A Very Special Award…

April 18, 2008

SA

You may have noticed this little button over in my sidebar for some time now. It’s been sitting there, patiently waiting for me to get my illness plagued household pulled back together… waiting for me to remember. Well, I haven’t forgotten. It’s a pretty special little button, because that cute little girl splashing along in those rain puddles is Jacqui. I wanted to create a little something to pass on to extra special bloggers who are inspirational in their strength. You know the sort… the ones that smile through the tears, and keep that upward tilt to their chin no matter what. The ones that keep walking even when life’s path becomes daunting in it’s steepness. This month, I would like to honor two such souls.

Tiff, of Three Ring Circus. Tiff is my mommy hero. And has she ever had one tough month. Not only has she just passed the fourth anniversary of her sweet little William’s death, she also has had to wrangle two serious hospital admissions in less than a month with her beautiful little Ivy. Somehow she keeps going. Somehow she is still able to crack a wry smile and a tongue in cheek joke now and then. Somehow she keeps her beautiful family in even more beautiful smiles. How? Because she’s the Mom. And an exceptionally fine one. Keep singin’ Tiff. Your song means more than you’ll ever know.

Melody of Slurping Life. In the space of a few months, Melody has been through countless medical challenges, both for herself and for her wonderful, vibrant household of boys. She also quietly surrendered a treasured hope of her heart with a smile and a heart filled with prayer. And my heart wept and prayed with hers. She’s a selfless soul, reaching out to help others even when her own world is reeling with heartache. If that’s not singing in the rain, then I don’t know what is.

I would be honored if you would both be the very first recipients of this award. And pass it on to someone else. Someone you have found singing in the rain or whistling in the dark. The world needs more such souls and we should reward them with ounce of sunlight we can spare.


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Little Quiet People…

April 16, 2008

QF5

Some time ago, I was smitten with one of Michelle’s posts at Scribbit, where she outlined instructions for making a “quiet family”. Michelle, in turn, had borrowed the lovely idea from the clever author of Simply Stork.

I read both posts and thought of the numerous, nay countless times we have found ourselves waiting in doctor offices over the past five years and the many times I had wished I had something small, fascinating and quiet to command Jacqui’s attention as we waited. And here it was. An adorable, clever, and affordable answer. I even had everything to make a set or two in my craft bin, with the exception of the wooden game pieces (which I found at a craft store for $1.29 for a pack of four). Soon I was happily crafting away while my bemused husband looked on — wondering what in the world I could possibly be up to. I finished one set and then got distracted by family illnesses until a bloggy friend, Tiff at Three Ring Circus, posted her lovely version. That inspired me to finish up my second set, and here are the results:

QF1

QF2

The first set, like Michelle’s first set, is a traditional family — a dad, mom, brother, sister, and I just couldn’t resist adding a baby. I also was in the possession of some wooden beads, wooden spools and yarn remnants. After goofing around for a bit, I came up with a floppy pair of family pets — a puppy and kitty. The little wooden set is called a “quiet family” because they don’t have any mouths… get it? “Shhhh… Jacqui, they don’t talk… no mouths, remember?” Works like a charm.

QF3

QF4

The second set, like Michelle’s second set, is a fairy tale set. I modified the characters a bit, changing them to a king, queen, princess, knight, fairy, and a floppy beaded dragon (who for some reason just makes me want to laugh).

And I have to tell you… they are a huge hit. HUGE! Jacqui played quietly with them at our last doctor outing for the entire visit. Something that has NEVER happened before. Sometimes a little simplicity can accomplish wonders! Thanks Michelle and Simply Stork, for sharing a bit of your collective genius with a most grateful mom.


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Stop!! I’m Blushing!!

April 1, 2008

OK, it’s obviously been too long since I’ve done an award post… and goodness, have you guys ever been busy! Lots of awards to pass on today… are you ready?

EB

First up - Many thanks to the delightful duo, Carrie at Chocolate The Other White Meat and Kandy at Ramblings of a Redneck Woman who have dubbed my blog ‘Excellent’ with the Excellent Blog Award. I find you ladies to be most excellent as well!

I am passing this award on to the following Excellent blogs:

Lucy at An Ordinary Mom
Thomas at The Gluten-Free Casein-Free Diet Experience
Karen at Only Sometimes Clever

Next, Summer at Summer’s Nook awarded me with the Powerful Words Award, and I couldn’t have been more delighted! A true compliment, coming from Summer, who writes with the most beautiful, powerful imagery. Thank you, Summer!

PW

I am pleased to pass these awards on to:

Jo at Florescence
TaunaLen at TaunaLen

Next, I would like to thank Stacey at Not For Profit, But For Joy for awarding me with the Blogging With A Purpose Award. A higher compliment could not be paid to me, Stacey. Thank you so much for your kind words about my efforts here.

BP

I am passing this award on to the following bloggers who put heartfelt purpose into every post:
Casey at Casey’s Critical Thinking
Isaiah at Joie de Vivre
Becky at I know Something Good
Shalene at A Proverbs 31 Woman Wannabe
Kathy and Tim at Duckabush Blog
Sarah at Real Life
Angie at Sonflower
Liv at Liv Laugh Luv

Next, thank you to Tiff at Three Ring Circus for the delightful Magical Golden Blogger Award — Thanks for the smile, Tiff!

GB

I am passing this one on to Casey at Casey’s Critical Thinking for his magical assistance in helping me tame the terrors of my new WordPress blog’s plugins. Were it not for you, Casey, the only plugins I would have successfully installed by now would be from the ‘Hair Club’ because I would have torn all mine out in utter despair and frustration had you not come along when you did. I pay grateful homage to the WP Plug-In Master!

^:)^

The next two awards are from one of my ‘favorite-ist’ bloggers, Trish at My Little Drummer Boys. She’s the wonderful Aussie mum of two delightful little twin boys who never fail to put a smile in my day. The awards were given to her entire blogroll, and I picked them up to share with a few special bloggers. Thanks Trish! The first is the
I Love You This Much Award

LY

I would like to pass this award on to three lovely ladies that I just adore:

Carrie at Chocolate The Other White Meat
Kandy at Ramblings Of A Redneck Woman
Leejo Bert, Bean, Rockstar, and Schmoozer

The second award is the Best Blogging Buddies Award and I would like to pass this award on to some special friends who just make blog-land a happy place:

BB

Jen at Unique But Not Alone
Ursula at The Daily Drool
Kristi at Music Mom Of 2
Jenn at The Daring Adventure
Shannon at Gabi’s World

Still with me? Told you that you guys have been busy! The next award is the Grrrr8 Blogger Friend Award from Marla at Marla Baltes. Marla is a wonderful blogging friend with a beautiful little girl who also suffers from CVS like Jacqui does. I know she would appreciate any of your prayers on behalf of her little girl. Marla gave this award to all of her commenters on Valentine’s day (Thank you Marla!), and I’m going to pass it on to some wonderful new friends who have been commenting at In The Life of A Child — welcome!

GF

DP at Poetic License
Mima at Mima’s Doings
Christina at Momology
Krista at Going Gluten Free
And also to Sophie… Even though you don’t have a blog…

:)

Next is the Faithfulness Award from Deb at Mom Of 3 Girls and Summer at Summer’s Nook. Thank you Deb and Summer, I wish I could pass this one right back to you two… you are the epitome of faithful blogging buddies!

FA

I’m going to pass this award on to some blogging friends who never fail to stop by and brighten my day with their comments and emails… you ladies are like sunshine!

Marla Marla Baltes
Jo Florescence
Tiff Three Ring Circus
Becky Abba Stories
Trish My Little Drummer Boys
Elissa Managing Autism

The Next Award is the You Make My Heart Flutter Award from a blogging buddy of mine who is the wife of a police officer with a private blog. This award really put a smile in my day! Thank you ‘Mrs. Anonymous’!

FL

I’m passing this award on to the following lovely ladies who routinely tickle me with their wonderful comments and friendship:

Lainey at Blog In My Eye
Trish at My Little Drummer Boys
Deb at Mom of 3 Girls
Ice Cream Diary at My Ice Cream Diary
Summer at Summer’s Nook
Tiff at Three Ring Circus
Corey at Living And Loving Every Minute Of It

Next, Tiff at Three Ring Circus awarded me with the lovely Beauty Within Award. I feel the same about you, Tiff — thank you!

BW

I would like to pass this award on to some exceptionally lovely souls:

Donetta at A Life Uncommon
Kim at The Bitter Ball
Corey at Living And Loving Every Minute Of It
Val at Dig Your Toes In

The next award is from the lovely Tiff at Three Ring Circus and it actually made my cry. To understand why, you need to know Tiff. Which if you don’t, I suggest you get over to her place and start reading. Like yesterday. Tiff is beyond amazing and is fighting her way through some of the most heart-rending struggles imaginable. And she’s a dear, dear friend. She’s created the Blogs With Heart Award for blogs that have touched her heart. I can’t ever recall a time when I’ve been more touched by an award, and it’s a beauty…

BH

This very special award goes to some very special ladies who have touched my heart with their incredible stories of courage…

To Melody at Slurping Life as she struggles through sudden medical challenges in her own life while raising three beautiful boys with special needs and waiting with quiet patience for God to reveal his plan for her family.
To Pam at Rhett’s Journey as her family faces a string of upcoming surgeries for her darling little boy and the financial challenges that come with raising such a child.
To Tammy at Praying for Parker as she fights with the beautiful courage of a mother’s heart to secure the medical treatment her precious little boy so desperately needs while trying with all her heart and might to care for her family’s financial, physical and emotional needs as well.

Each of you are so very, special and I hope this award brings a little smile to your week.

The next award is from Summer at Summer’s Nook and is called the Wonderful Women of The Web Award. Summer, you spoil me rotten… you know that don’t you? (Thanks Summer!)

WW

I’m passing this award on to four ladies who each inspire me in unique ways:

Jenn at The Daring Adventure
Michelle at Scribbit
Lynnae at Being Frugal
Katherine at GFCF Mommy

The next award is the Perseverance Award from Isaiah at Joie de Vivre. Isaiah gave me this award as an encouragement for persevering during Jacqui’s recent lengthy back-to-back CVS episodes. Thank you for the wonderful encouragement, Isaiah. I have appreciated it more than you know!

PA

I would like to pass this award on to the following ladies who have been persevering through some extreme challenges:

Pam at Rhett’s Journey
Tammy at Praying for Parker
Melody Slurping Life
Tiff Three Ring Circus
Marla Marla Baltes
Leejo Bert, Bean, Rockstar, and Schmoozer
Elissa Managing Autism
DP at Poetic License
Mima at Mima’s Doings

And the last award to pass on is the You Make My Day Award from Becky at Abba Stories. Becky makes my day in so many ways and so often, that I would have to write a book to tell you about them all. Thank you Becky — you’re a treasure!

:)

MD

I am passing this lovely award on to:

Kristi at Music Mom of 2
Stacey at Not For Profit, But For Joy
Amber at My Joyful Life As A Momma And Wife
And my wonderful ‘Anonymous’ friend who made my day with the You Make My Heart Flutter Award

Finally, a few awards that I have already passed on, but I wanted to thank the lovely ladies who passing them on to me a second and third time - Thank you Kim, Amber, and Corey - you are all bright spots in my day!

Kim at The Bitter Ball for the Daily Dose Award.

Amber at My Joyful Life As A Momma And Wife for the You Make My Day Award.

Corey at Living and Loving Every Minute of It for the Spreader Of Love Award.

And special thanks to Corey at Living and Loving Every Minute of It with her fabulous post, “Hopeless Or Hopeful?” which inspired me to finally get this bear of a post out of my over-stuffed drafts folder - Thanks Corey!


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Gluten-Free Gems - Korean Chicken Noodle Soup (From Karen at Only Sometimes Clever)

March 8, 2008

AAB

Well, we are all still sicker than sick around here, but I’ve had this post rattling around in my drafts for a couple of weeks, so I thought I may as well post it… and incidentally introduce you to a couple of fabulous Gluten-Free bloggers… Seamaiden, at The Book Of Yum, and Karen, at Only Sometimes Clever.

Seamaiden, at The Book Of Yum, runs a wonderful Gluten-Free blog that I am just getting to know and is hosting an “Adopt A Gluten-Free Blogger” web event this week to get everybody cooking and swapping those favorite recipes. I’m really looking forward to taking a closer look at her recipe archives once we’re feeling better around here!

And… in honor of our week of horrific hacking and coughing, I’m going to share with you our family’s favorite new twist on chicken soup. It comes from one of my absolute favorite Gluten-Free bloggers who I am officially adopting for this event, Karen, at Only Sometimes Clever. Karen is a wealth of gluten-free know-how and is either the author or inspiration of many of our family’s favorite recipes. I love her creativity with her recipes and she is wonderful about answering questions if you’re just getting started. Whenever I find myself in a gluten-free menu rut, I head over to Karen’s to see what she’s been up to and I’m never disappointed. I’ll always have a soft spot for Karen… her sugar cookie recipe was my very first success story in my adventures in gluten-free baking. (I nearly cried in relief after those cookies came out of the oven… a gluten-free recipe that actually worked!) So here you have it… yet another gem from Karen:

Korean Chicken Noodle Soup (From Karen at Only Sometimes Clever)

KCNS

This soup has been a wonderful addition to our family’s meal rotation! It is easy to prepare, cost-effective, wonderful tasting, and a hit with our very picky five-year-old. The accolades in our house just don’t get any better than that! For Karen’s original recipe, please click on the recipe title above the photo or on this link here.

The ‘noodles’ are a Korean pasta known by a number of names: rice cakes, ddeok guk ddeok, rice ovalettes, dduckgook, duk-guk, and many more. They are something I would have likely never been brave enough to try on my own, but boy would we have missed out! They are made from sweet rice flour and the oval pads cook to a soft and pleasingly chewy texture. Jacqui, The Queen of Dinner-time Doddling, snarfs them down as if she fears any moment I will yank them from her plate… which left me stunned and exceptionally pleased! I found them at our local Asian market in a large two-pound bag for $2.39 and we had a lunch and two dinners for three out of the recipe. I picked up the baby bok choy at the Asian market too… a large 1.5 lb pack for $0.79 verses $5.98 for the same amount at our local specialty grocer’s.

Now, I’ll tell you how I modified the recipe to suit our family’s tastes…

I did everything exactly as Karen suggests in her recipe with a few exceptions: 1) I skipped the Nori 2) I used Pacific Foods Chicken Broth for the base. 3) Our family loves garlic, so I went on the heavy side with the addition of garlic to the soup, and 4) I added some sea salt to taste.

I skipped the Nori (because my family members are not seafood fans) but I’m sure it’s a fabulous add if seafood is your thing! I used the Pacific Foods brand chicken broth for the stock because I haven’t been able to locate any bullion base in my area that is both gluten-free and casein-free. I did find a version of the “Chicken Better Than Bullion” that Karen mentioned in her post, but the only one I found, while gluten-free, had whey in it. So looks like I’m stuck with either the giant cartons of broth or making my own stock for now.

The soup as prepared for our family has a wonderful garlicky chicken taste that blends nicely with the unique texture of the noodles. An added plus: Jacqui has declared that she loves bok choy… score one for vegetables! Thank you Karen, for helping us transform our chicken noodle soup from ho-hum to heavenly! And thank you, Seamaiden, for this wonderful event to meet other gluten-free bloggers and discover some great new recipes.


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