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In The Life of A Child, all content and images unless otherwise noted © 2006 - 2008


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This blog is really about our kids, Jacqui and Kyle:

Jacqui is a wonderfully energetic and opinionated five-year-old. She was born with a rare birth defect known as a lymphatic malformation (LM) and has been through a lot in her young life. She had a trach until she was a year old, had surgery in New York to remove her LM with world renowned surgeon, Dr. Milton Waner (at age three), and still has a G-tube. She is a bright sunny soul in spite of everything.

Kyle is a thoughtful, and slightly reserved 1-year-old with a magical giggle and a wise-looking smile. He is clever and charming and a bundle of pure joy.

Our goal as parents: To treasure every moment and to raise our children to be extraordinary individuals.

Welcome to an inside view of our world!



Finding Courage Through Sharing ~ Coming To You April 24, 2008!

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Picky Eater's Club ~ Coming To You May 8, 2008!

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Childlife's Singing In The Rain Award ~ Coming To You April, 2008!

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Vintage Jacqui… Where’s Da Budderfly?

May 1, 2008

BU

From about this time last year…

A bright spring morning and Jacqui greeted me with even more than her usual enthusiasm…

“Mom! I finded somethin’ when I was playin’ in da backyard yesti-day!”

“Oh, really? What did you find?”

“A crista-list!!”

“A what?”

“I said, Uh…CRIS…DA…LIST!! It’s kinda like another name for a kuhtoon, Mom.”

“Oh, You mean a chrysalis? A cocoon?”

“Dat’s wat I said. You needta pay datenshun wen peeple’s talkin’, Mommy.”

“I was paying attention. How do you know what a chrysalis is?”

“Oh, Mom. Most evvybuddy knows dat.”

“Huh. Interesting… ”

“Yes, dat’s wat I say - ‘innerestin!’ Soooo… I peeked in it!”

“You what?”

“Mooooooommm! You needta lissen! I said, I…PEEKED… IN…SIDE…DA…CRIS….DA…LIST!!”

“You did? What was inside?”

Her shoulders drooped and she shrugged in disappointment, “Dere was no budderfly innit.”

“There wasn’t?”

“Nope. I looked and I looked, and I think-ded, ‘Where’s da budderfly?’ I think-ded like dis ‘THINK, THINK, THINK’ like Pooh does (tapping her forehead), but I jess didn’t find her ennywhere. She’s jess missin’ I guess.”

“Was there a caterpillar inside?”

“Nope. Just green squishy stuff.”

“Oh dear.”

“Wat you mean when you say dat, ‘Oh dear?’ ”

“I think the green squishy stuff is your caterpillar. That is, it was your caterpillar before you peeked inside.”

“WHAT??? Who squished my caterpillar Mom?!!?”

My little future entomologist…


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You Need Da Cleenin’ Power, Mom…

April 26, 2008

YG

Image Courtesy Istock Photo

Jacqui: Mom, I needta tell you somefing… Da kitchens and bafrooms are da germiest places in da house. You need da cleenin’ power, Mom.

Me: I do?

Jacqui: Yes, to get rid of da germies.

Me: It gets rid of germs?

Jacqui: Oh, yes! An’ da scoap scrum an nascee snackterias in da baff tub too.

Me: Soap scum and nasty bacteria? Well we certainly don’t want any of those.

Jacqui: Well… I hate ta tell you dis, but I fink I found some ub dem in da bafroom.

Me: You did?

Jacqui: *Sigh* Yes! Dat’s why I was tellin’ you dat you need da cleanin’ power stuff.

Me: Oh, I see. What is the cleaning power stuff?

Jacqui: Oh, I dunno. Some lady on TV poured some yellow stuff in a big green bucket wen Daddy was watchin’ TV. It’s posed to be da cleanin’ power dat chases all dat yucky germie stuff away. It looked yuckier dan da scroap scrummies and snackterias, if ya ask me.

Cleaning tips from a five-year-old… fabulous. Excuse me while I locate the disinfectant…

cleaning tips


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Moooom!! Looook!! Have You Ever Seen Anything Like It… Or No?

April 16, 2008

Our morning started out with an unexpected guest…

PW

And since no one can quite narrate such a scene as well as Jacqui… a video clip for your enjoyment…

These are literally the very first moments of our morning. I was yanked awake by a little girl shouting, “Mommmmmm!! Comere quickly!! Dair’s dis most ‘mazing super-ize in da backyard dat I’ve never seen before!” And then she shoved the camera in my hand while tugging me upright, “Here! You’ll probly need dis!”

As you can tell in the clip, Jacqui is a morning person. Me? Not so much. I was still waking up and not yet ready to meet her inevitable onslaught of chatter with the enthusiasm it deserved. And to be fair, possums are not exactly on my ‘Top Ten’ list of things to be excited about in the morning. Or even on my list of things to be excited about ever. Jacqui now claims she is no longer interested in having a hamster for a pet (as she had previously informed us yesterday). She states that “a possum would make a very more clebber pet, don’t you think?” Hmmmm… clever? Perhaps. Conceivable? No.

Note: You will not be able to see the video if you are viewing this post through a reader. It might take a few moments for the video to load and buffer after pressing the play button, so be patient.


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Counting Little Blessings…

April 9, 2008

DW

Image Courtesy Istock Photo

Kyle: “Wun-fee-fibe-nigh…TEN! (claps hands) ‘Ray!! Bwass-awv!

Jacqui: “No, Kyle. Dat’s how you don’t do dat. Like dis: “Ten, nine, eight, seven, six, five, four, three, two, one… blast off! Like dat. Try ‘gain.”

Kyle: “Wun-fee-fibe-sebin-TEN-BWASS-AWWWV! DEEEE-ENNNNN! Gackie shush!

Jacqui: “Kyle, don’t tell me to shush. Dat’s not polite and you’ll make Emily sad. I’m jess tryin’ ta help you not count all wrong. Count downs start wif ten, not one. An’ you missed a whole buncha numbers. You bedder start over… Ten, nine…

Kyle: “Wunfeeseben…TEN! Bwass-AWWWV! (Tucking chin and glaring) AWWW DUNNN GACKIE!!

Jacqui: “Crabby boy. Summday you’ll wish ya lissend to me. Don’t ebber say I din’t try ta tell ya.”

Kyle: “THHHHBBBBBBBT!!!”

Jacqui: (looking to me with an appalled gasp) Well you know Mom, he’s not goin’ ta be very pop-lar in play groups wif dis sorta nonsense. Emily will be soooooo disda-poin-ed!

And so my day starts… with a smile in my heart for my silly, funny little kiddos. Each of them a blessing.

If you’re new here and wondering what Jacqui was talking about with regards to Emily, click here.


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The Sun May Come Out… Tomorrow…

April 2, 2008

SH

Image Courtesy Istock Photo

We’re starting to see the clouds parting on this last CVS episode… little glimmers of Jacqui peeking through the fog now and then.

During one of her brief ‘awake times’ today, she mentioned that she might be interested in eating tomorrow…

“Mommy… I fink maybe I will like to eat a snack tomorrow.”

I peered down at the sleepy head in my lap and smiled. “Well, that would be great! What do you think you would like to have for a snack?”

She arched an eyebrow and gave me a fleeting glimpse of a sleepy dimple. “Hmmmm… how ‘bowwwwwwt… SUSHI!!”

“Sushi??” I was completely thunderstruck. The word ’sushi’ is never uttered at our house. We’re not sushi people. We’re not any kind of seafood people. Not even fish-stick people. Maybe a-tuna-sandwich-now-and-then people, but definitely not sushi people.

She flashed a toothy grin up at me and repeated, “SUSHI!”

“Do you even know what sushi is?”

A comical attempt at a serious scowl crinkled her brow as she answered, “Course I do. Itsa kinda not-cooked fishy. Probly reely slimy. Don’t worry, it won’t make me gag too much. Yummy!” She made a loud slurping noise for emphasis.

I just looked at her in stunned and bewildered silence.

“You’re ‘posed to squish your eyebrows all up like you’re mad and say, ‘Ha, ha. Very funny’ “.

I was completely lost. “What??”

She sighed in dramatic frustration. “I was bein’ sour-catty, Mom.”

I rubbed my temples trying to locate a fragment of the conversation that I could make sense out of. “You’re what?”

“Mooooom! Sour-catty… you know… it’s like a not-funny joke. Wen sumbuddy is bein’ sour-catty, you’re all-ays ‘posed to say, ‘Ha, ha. Very funny.’ Like dat. But only don’t laugh. Now you say it.’

“Sarcastic? You’re being sarcastic?? For crying out loud — you’re five…”

“Mom. Pay da tenshun. Say, ‘Ha, ha. Very funny.’ ”

“Ha, ha. Very funny.”

“Dat’s better. Sometimes you take a very long time to figger thins out, doncha?”

… Ha, ha. Very funny.


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