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This blog is really about our kids, Jacqui and Kyle:

Jacqui is a wonderfully energetic and opinionated five-year-old. She was born with a rare birth defect known as a lymphatic malformation (LM) and has been through a lot in her young life. She had a trach until she was a year old, had surgery in New York to remove her LM with world renowned surgeon, Dr. Milton Waner (at age three), and still has a G-tube. She is a bright sunny soul in spite of everything.

Kyle is a thoughtful, and slightly reserved 2-year-old with a magical giggle and a wise-looking smile. He is clever and charming and a bundle of pure joy.

Our goal as parents: To treasure every moment and to raise our children to be extraordinary individuals.

Welcome to an inside view of our world!



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Our Family Christmas Letter - Merry Christmas!

December 24, 2007

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So are you all ready for another one of these things? Not sure I am, but since you all seem to keep reading them, I guess I’ll keep writing them.

So what did we do this year? Well, for once we thought we would try something totally out of our scope of experiences. A little thing called “normal”. I know, I know, crazy, huh? The word even sounds kinda weird… “Norrr-maaallll… No-rah-mell… Noar-mulllll…“

Nope. Just can’t seem to get used to it.…It’s not just me is it? Please tell me it sounds just a little odd to you too… No? Can’t you even try to humor me a little? What? That’s my job, you say? You’re expecting this to be funny??

Well, huh. What to tell you? Hmmm… how do you folks write these things anyway? I don’t think I’ve ever written a normal Christmas letter in my life. I think I give up. Yep I give up. This is way too boring. How about we turn this thing around and give you a few bizarre highlights for the year… You know, for old time’s sake? Whew… Glad you agree! Bizarre I can do just fine!

Da-tada-da!!!! Presenting…Bizarre Highlights From Our Family In The Year 2007…

  • For the first time ever, Jacqui was able to take swimming lessons. She found them particularly vexing because she was under the impression that she was really a mermaid and that once she had the opportunity to go completely underwater, her mermaid tail would then magically appear. We had one grumpy little guppy on our hands when no hint of a fin appeared during lesson number one.
  • Kyle went directly from walking to climbing. And not just your basic every-day run-of the-mill climbing. We’re talking outrageous-adrenaline-junkie construct-rickety-ladders-out-of-anything-under-ten-pounds climbing. Give him two seconds and he’s sitting in the middle of the dinning room table, tap dancing on a kitchen counter, or poised on a window sill like a pint-sized base jumper.
  • I thought that in the spirit of all things normal, I would try my hand at something new. Weeding. Result? Really, really ticked off hive of yellow jackets. Really, really stung would-be-gardener. Approximately three less weeds in our front yard. All said and done I ended up with somewhere north of TWENTY stings. I refused to go to the ER. Simply on principal. It was July and no one had been to the ER and I wasn’t about to be the one to open that can of worms. Not in a family capable of logging ten separate admissions in a twelve month period! Jacqui gave me some very useful advice on the subject…”You really shouldn’t oughta try n’ pet bumbly bees mom. It makes ‘em kinda grumpy.” Thanks. Duly noted.
  • Ken is more competitive than he lets on. Apparently, he was feeling a bit upstaged by my little bumbly bee debacle. He decided to one-up me by getting up-close and personal with an insanely ginormous spider. The fiendish thing chomped Ken’s thumb. His thumb promptly swelled up with a menacing looking blister. I promptly suggested the ER. You know… ‘Cause it was a spider bite. Never mind that my hand swelled up like a catchers mitt when I was stung by yellow-jackets. Spider bites are serious ya’ll!! Get to yourself to the ER!! Who knows what that thing was? Could have been a Brown Recluse! Ken promptly spent the next thirty minutes photographically documenting the hugeness of the squished spider complete with calipers for a sense of scale. With over seventy photos. Yes I said SEVENTY. I was convinced the venom had gone directly to his brain. He finally went to the ER when I would not shut up. He came home several hours later with an exasperated expression and a $100 band-aid.
  • The kids got a kitty for Christmas last year. Kittens grow into cats really fast. Did you know this? Bet I know something about cats that you don’t… It is possible to shove a full grown cat into a plastic Fisher-Price Little People dollhouse. Yes it is! I have the photo to prove it. Said cats are not particularly grateful when they are rescued, however.
  • Jacqui thinks I’ve had a bit of a psychotic break. I attempted teaching her about manners this year and mentioned Emily Post. Jacqui asked where she was. I didn’t really care to have a lengthy discussion at the time and answered that she used to be a real person a long time ago. Jacqui’s conclusion: “If she ‘used to be real’, she must now be pretend… If she is pretend, then Mommy must have an imaginary friend. Best smile and humor the big people lest they completely lose it.” Jacqui now takes great pains not to offend my fastidious imaginary friend and her pretentious manners. Whatever works.
  • Kyle is in love with our vacuum cleaner. We waited in vain for his first baby kisses. While he laughingly pushes us away from our pleas for just one little peck, he lavishly bestows them on our Hoover upright. Kyle has also shown his commitment to our family’s rich ER tradition. He logged his second visit this year with a face plant off the couch, punching his teeth through his bottom lip, which required three stitches. Way to take one for the team, Buddy!
  • Kyle was exceptionally uncooperative for our Christmas photo shoot. We got one photo of him by himself. That’s it. The rest of the time he was screaming and running around. For our family picture and the one with Ken and Kyle, the only way we could get him to do anything but scream at the top of his lungs was for Ken to hop up and down with him. So in our family photo, the photographer had to time the picture with Ken’s landing. Several didn’t turn out because Jacqui kept asking why Daddy was hopping up and down. We’re very glad that it’s a whole year before we have to do that again!

Well, I hope I have redeemed myself from my abysmal start to this letter and you have been rewarded for reading it with a chuckle or two. We have truly been enjoying the blessings of a relatively normal year. Jacqui is doing fabulously well and started eating on her own without supplementation from her feeding tube this past June. Kyle has been a bundle of laughs as he plows through all those marvelous ‘firsts’. When we look back on the past six years, we realize how very richly we have been blessed, and how truly faithful God has been. We are wealthy in the things that matter: Faith, family, and steadfast friends. We pray that your homes will be filled with similar joys throughout the Christmas season and the coming year. Our hearts and prayers are with each of you!

Much Love,

Ken, Michelle, Jacqui and Kyle


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Christmas Moments

December 23, 2007

While last week everyone was so sick that it was a real challenge to find a moment that I truly wanted to remember, this week was packed so full of them that I couldn’t possibly choose just one.

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There was the smile on Jacqui’s face as she she showed me her gingerbread house creation that she made at her play group on Christmas PJ Day.

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The joy of making Christmas cookies with Jacqui while Kyle scrambled excitedly about our feet with his mixing spoon and bowl trying out his first attempts at the word, “Koooooo-kie? Koooo-kie? Keee-Kooo? Koooooooooooo-kie?”

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And there was our wonderful evening walk through the neighborhood, looking at all the Christmas lights. We piled the kiddos in their Radio Flyer red wagon with pillows, blankets, warm water bottles, and sippy mugs filled with hot chocolate. They were snug as bugs and giggling those magical Christmas giggles, the ones filled to bursting with anticipation and twinkles from widened little eyes.

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Then off we rolled on our neighborhood tour… Jacqui yelling elatedly, “Wow! Look at dat! Oh, Wow! Look over dair!” And Kyle joining in with a mittened paw pointing anyplace he saw light, including street lamps with his one beautiful baby word, “Yoook! Yooooook!”

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Jacqui slurped down most of her hot chocolate, spilled some, and then attempted to go after Kyle’s. Nothing doing! Kyle held on with mittened temerity, “Mine! Miiiiiiinnne!”

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The last stop on the tour of lights was our neighborhood Grand Finale House. Every neighborhood has one. You know the one. The house so lit up that you can probably see it from space. Even the kids were in awe. Their little exclamations turned into whispers - “Wow…” “Yook…”

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Kyle made me giggle on the way back home as he leaned back into his pillow, arms propped perpetually out to the sides by layers of warm clothes. He made me think of Randy in A Christmas Story… “Help!! I can’t put my arms down! Help!!!!”

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As we wobbled along, I noticed Jacqui tapping her mittened hand to her head. I caught up from behind and looked into her face - her eyes were closed as she continued to tap. I smiled and asked, “What are you doing, Jacqui?”

She paused mid tap and opened her eyes, then gave me a wizened little smile, “Making a memory, Mommy. A Christmas memory. I want to ‘member dis for never and never.”

And my heart melted. Right there on the frozen sidewalk.

I slipped my hand in hers as the wagon creaked along, “Me too, Sweetie. Me too.”

We rolled the wagon back towards home for pajamas, bedtime stories…

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And the inevitable Christmas meltdown. Even the tears I will tuck away in my heart to remember with a smile on a Christmas many years from now when my head is gray and our house is silent. I know that these moments are fleeting. In nothing more than a blink my tiny children will no longer be children. I want to soak in every ounce of these moments, down to the very essence of them. I look into their faces and and etch the memory of them on my heart - the curve of every baby feature, the magic of every giggle, the sparkle of Christmas excitement in every widened eye. These will be the Christmas gifts I cherish for years to come.

This post was written for the Wrapped Emotions writing prompt:

“Capturing the Gift of Every Moment”

Please click on the link below to visit Wrapped Emotions to see how other writers took on this prompt…

Wrapped Emotions button


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Somebody’s Been Watching A Little Too Much Nutcracker Ballet…

December 22, 2007

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I could be wrong, but somehow I don’t think this was the cat’s idea…

Ok, so I helped tie the shoes on, but it really wasn’t my idea. Somehow I just couldn’t say no to my over-zealous little ballerina and the inevitable resulting photo op. I think Jingle must be the most tolerant cat on the planet. After being crammed into a dolly-sized tutu and ballet slippers she was forced to participate in kitty ballet lessons. She has also been forced to watch The Royal Ballet Nutcracker so many times that I swear I saw her doing a Pas de chat through the living room the other day…


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Christmas Tag!

December 21, 2007

CT

I was just tagged over at My Ice Cream Diary!

Here are the posted rules for this one:

1.Ok, this is specifically not a meme. It’s a HOOPLA. Got it?
2. List 12 random things about yourself that have to do with Christmas
3. Please refer to it as a ‘hoopla’ and not the dreaded ‘m’-word
4. You have to specifically tag people when you’re done. None of this “if you’re reading this, consider yourself tagged” stuff is allowed…then nobody ends up actually doing it. The number of people who you tag is really up to you — but the more, the merrier to get this ‘hoopla’ circulating through the blogosphere.
5. Please try and do it as quickly as possible. The Christmas season will be over before we know it and I’d like to get as many people involved as possible.

Sooo… Twelve random Christmas related things about me… Here goes!

1. I know it’s cliche, but I don’t care… Christmas is probably my all time favorite time of the year. I’m sappy that way.

2. My Mom started giving me a Christmas ornament every year when I was a kid and sort of created a Christmas ornament addiction. I probably have enough ornaments to fully deck out 5 or 6 trees and every single ornament is special, meaning it was either given to me by someone I care about or appeals to me on some aesthetic or sentimental level.

3. We have a 300 disc CD changer and it is over half filled with Christmas music. Ken just cannot grasp the need for so many Christmas CD’s and Christmas ornaments. He is also baffled by the number of books I own, but that’s another story.

4. I absolutely detest eggnog. I would rather drink a whole batch of cake batter - at least that way I could choose chocolate or something. Ken on the other hand? He loves eggnog (alcohol-free). I think it’s because he doesn’t read enough.

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5. I’m a little bit addicted to decking my kiddos out in Old Navy Christmas PJ’s (mostly ’cause they’re adorable and inexpensive)… or other such cuteness. I start watching for them in October.

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6. I read the same book every Christmas. The Substitute Guest by Grace Livingston Hill. It’s not a literary masterpiece or anything, just a family Christmas tradition. I start reading a chapter a night on December 6th by the light of the Christmas tree and finish up Christmas Eve while reveling in the knowledge that the rest of my family is reading it too. My Dad started reading it to us out loud each year when when my brother and sister and I were in grade school, so there is a lot of sentimentality attached to the book. It’s old-fashioned and in places, down right corny, but it just evokes everything magical and wonderful about Christmas to me. So move over Dickens… this one is a classic where it counts.

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7. One of my favorite Christmas ornaments is a little elf that has been on my family’s tree since the time I was a kid. He’s sitting on a little swing with a work bag and a little wrench that fits over a Christmas light to look like he’s working on repairing the light string. I don’t know why, but I always insisted on putting him on a blue light. My siblings found my neurotic behavior amusing and delighted in switching him to other colored lights. Mom gave me the little elf the year Ken and I were married and he’s been on a blue light ever since. Unless my brother or sister have recently been over for a visit, that is. They still move him to other colors every chance they get. Are you reading this Jeff? I’m on to you buddy! One of these days you’ll be looking at a tree with all blue lights over here!

8. I’m the one who has to put up Christmas lights at our house. If it were up to Ken, they would stay in permanent storage. I think it’s the eggnog.

9. I love old Christmas movies… It’s a Wonderful Life, Miracle On 34th Street, White Christmas… Ken would prefer to watch Dumb and Dumber. I fall in love with him all over again every Christmas when he watches them with me anyway… Even though he can’t suppress the urge to mock the musical scenes of White Christmas.

10. I love Christmas concerts… Handel’s Messiah, The Nutcracker Ballet, A Michael Allen Harrison Christmas piano concert. I would go each and every year. Ken - not so much. Particularly when it comes to the ballet. I loved the enraptured look on his face this year though, as he sat watching his daughter in her first Christmas ballet performance. He’s got to be the best Dad in the whole world, with the exception of my own.

11. I’m REALLY tired of Alvin and the Chipmunks. Jacqui has been holding our CD player hostage and playing that thing over and over and OVER. Ask me if we’re going to see the movie. NOOOOOOOO!!!!! I have also watched the Charlie and Lola Christmas Special from the Disney Channel more times than any sane person ought to in a one week period.

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Our Advent Calender

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Wise Men From Our Nativity Set

12. To me, the most important thing about Christmas is that my children grow up understanding and valuing its true meaning and I fill the month with traditions to foster that hope. We keep an advent calender that Jacqui races to every morning. We light candles in our advent wreath and talk about the Christmas story each Sunday through December. We also keep an old French tradition using our nativity set. It’s a wonderful, durable resin nativity set made by Fontanini that the kiddos can’t possibly break and it is lovely too. Jacqui is just mesmerized by it and we tell her how very far the wise men had to travel to come see baby Jesus. We start the wise men out in some far room of the house the week before Christmas, moving them closer to the nativity scene each day. We end up with them arriving at the nativity scene Christmas morning, even though the authentic French tradition doesn’t have them reach the nativity set until January 6th (I know that it’s not exactly historically accurate either - we’ll explain that part when the kids are older). Every morning Jacqui scrambles around until she finds the wise men. When she finds them she gets to pull a small gift from under the tree to open (it’s usually some dollar store trinket) and we talk about the gifts that the wise men brought. We also don’t place the baby Jesus in the nativity scene until Christmas morning. Every morning she runs out and looks in the manger to see if he’s there yet. There are no Santas in our house. It’s not like an actual ban or anything, he’s just not the focus around here. We choose some form of giving to focus on for the season. Last year, we did Operation Christmas Child. This year, we shopped for a child needing a Christmas gift from a tag on the tree in the mall and shared some of her toys with a local shelter. That’s what Christmas is to me… the ultimate gift and a time to remember what matters most in life. The best gift I could hope for is that my children grow up knowing the same joy of Christmas that filled my childhood and continues to fill my heart today.

For this one I tag Kandy over at Ramblings of a Redneck Woman and Summer at Summer’s Nook… if either of you are up for it : )


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Gluten-Free Gems… Our Three Favorite GFCF Christmas Cookies

December 20, 2007

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Well, we have finally recovered from all our croup craziness and are officially back on the Christmas train. Today was Christmas cookie day and our first year at making Gluten-Free Casein-Free Christmas cookies. They turned out fabulously well and so we thought we would share our top three favorites:

GFCF Big Batch Christmas Sugar Cookies and Gingerbread

Cookies

(From Karen at Only Sometimes Clever)

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Just so you know… That’s rice milk in the photo! : )

These are hands down, the best! They taste like the real deal, the dough is easy to work with, and they always turn out great. Our family’s Christmas gift to all our GFCF friends is to introduce you to Karen at Only Sometimes Clever (if you haven’t met her already). Karen came up with these wonderful recipes for GFCF sugar cookies and gingerbread cookies and since they cannot possibly be improved upon, I will just post the links to her recipes at her site:

Karen’s Big Batch GFCF Christmas Sugar Cookies

Karen’s Big Batch GFCF Gingerbread Cookies

Note: Sweet Rice Flour (or glutenous rice flour) used in these recipes can be obtained at Asian grocery stores for much less than the price you will pay for it at specialty grocery stores. We get ours in a big 5 pound bag for $5.69 per bag at our local Asian market.

The snowflake cookie was made with a 5 piece snowflake cookie cutter set by R&M International Corp.

GFCF Chocolate Snowball Cookies

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Rice milk in the photo : )

These I just converted from one of my family’s favorites. They turned out every bit as delightful as the originals - we were quite pleased!

CB1

Well, we have finally recovered from all our croup craziness and are officially back on the Christmas train. Today was Christmas cookie day and our first year at making Gluten-Free Casein-Free Christmas cookies. They turned out fabulously well and so we thought we would share our top three favorites:

GFCF Big Batch Christmas Sugar Cookies and Gingerbread Cookies

(From Karen at Only Sometimes Clever)

SC1

Just so you know… That’s rice milk in the photo! : )

These are hands down, the best! They taste like the real deal, the dough is easy to work with, and they always turn out great. Our family’s Christmas gift to all our GFCF friends is to introduce you to Karen at Only Sometimes Clever (if you haven’t met her already). Karen came up with these wonderful recipes for GFCF sugar cookies and gingerbread cookies and since they cannot possibly be improved upon, I will just post the links to her recipes at her site:

Karen’s Big Batch GFCF Christmas Sugar Cookies

Karen’s Big Batch GFCF Gingerbread Cookies

Note: Sweet Rice Flour (or glutenous rice flour) used in these recipes can be obtained at Asian grocery stores for much less than the price you will pay for it at specialty grocery stores. We get ours in a big 5 pound bag for $5.69 per bag at our local Asian market.

The snowflake cookie was made with a 5 piece snowflake cookie cutter set by R&M International Corp.

GFCF Chocolate Snowball Cookies

CS

1 1/4 Cup White Rice Flour
1/2 Cup Sweet Rice Flour
1/4 Cup Cornstarch
1/2 Tsp Xanthan Gum
1/2 Cup Margerine
5 oz Quality Unsweetened Chocolate
4 Eggs
1/4 Tsp Salt
1 Cup Sugar
1 Cup Packed Brown Sugar
2 Tsp Baking Powder
1/2 Cup Confectioner’s Sugar

Melt margarine and chocolate together in double boiler then set aside to cool as you prepare the rest of the recipe.

Combine eggs, sugars, and salt. Stir in cooled chocolate mixture and mix well.

Combine flours, xanthan gum and baking powder. Add to chocolate mixture. Add additional sweet rice flour in 3TBSP increments until dough is consistency of brownie batter. Cover and refrigerate overnight or until firm.

Roll into 3/4 inch balls and roll in confectioner’s sugar. Place two inches apart on ungreased or silpat lined baking sheets.

Bake at 350 degrees for 10-12 minutes, or until set. Allow to cool 5 minutes on cookie sheet before transferring to wire rack to cool completely. Makes 5 dozen.

Note: These cookies need to be immediately placed in an air-tight container after they cool or they will transform over-night from light and airy to hard and stale.

GFCF Chocolate Peanut Butter Balls

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These have been my husband’s favorite Christmas candy since I first made them for him when we were dating… sixteen years ago. The original version was made with real butter and 6 oz of semi-sweet and 6 oz milk chocolate. Ken just pronounced this GFCF version every bit as good as the original - Enjoy!

1- 18 Ounce Jar Creamy Peanut Butter
1 1/2 lbs confectioner’s sugar
1/2 lb melted margarine
1/4 Cake Paraffin
12 oz Quality Semi-Sweet Chocolate

Melt margerine and mix together with peanut butter and confectioner’s sugar. Roll into 1 1/2 inch balls and chill in refrigerator until firm.

Melt together the chocolate and paraffin in a double boiler or fondue pot. Push toothpick through the center of each peanut butter ball and dip in chocolate, leaving a small circle of peanut butter showing around the top of each ball.

Place on wax paper lined trays to harden. Transfer each chocolate peanut butter ball to paper candy cups if desired. Store in airtight container in the refrigerator.

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